Intern, Patient Advocacy

Why Join Us?   Be a hero for our rare disease patients   At Ultragenyx, we fundamentally believe that taking real impactful action to care for the needs of patients and our people is always the right thing to do. To achieve this goal, our vision is to lead the future of rare disease medicine. For us, this means going where other biopharma companies won’t go – challenging the status quo and creating a new model that advances our field so more patients and caregivers can benefit from life-changing treatments. We do this by following the science, applying a novel rapid development approach, making innovative medicines at fair and reasonable prices, and creating a collaborative ecosystem to reach patients in ways that are most meaningful for them.    Our commitment and care for patients extends to our people, so culture is an essential cornerstone for Ultragenyx. We remain continuously focused on creating a supportive and inclusive environment of profound learning and growth – so employees can thrive in all areas of their lives, in and outside of work. Ultimately, we want to be an organization where we would be proud for our family, friends and children to work.   If you want to have a meaningful impact, do the best work of your career, and grow a lot, both professionally and personally, come join our team.

Position Summary:

ultraimpact – Make a difference for those who need it most

Patients are at the center of Ultragenyx’s mission to bring to market novel products for the treatment of rare and ultra-rare diseases. The Ultragenyx Patient Advocacy team works to make a difference by supporting patients, caregivers and patient groups and develop productive partnerships and facilitate dialogue with patient partners and patient advocacy organizations to further mutual interests. 

Engagement with patients and patient advocacy groups is a critical success factor for the discovery, development and approval of investigational therapeutic programs in rare and genetically defined diseases. 
Direct patient interaction is required throughout discovery and development to inform trial design and recruitment, and to develop the appropriate partnerships necessary to support the commercialization phase and effectively serve the patient community. Internally, the team is responsible for infusing the patient voice into the everyday operations of the company, informing corporate strategies and key decisions, and nurturing Ultragenyx’s resolute sense of urgency and patient-centric culture. 

The Patient Advocacy team partners closely with the clinical development, discovery, commercial, regulatory, and public affairs functions to inculcate patient insights into Ultragenyx's programs, decision-making and communications. 
The Summer Intern, Patient Advocacy will work with the team to monitor, assess, plan and/or execute patient advocacy strategies and tactics related to pre-clinical, clinical and commercial programs. This position will interface with the Patient Advocacy team and appropriate internal staff from multiple functions to help incorporate the patient perspective into program planning and contribute to successful implementation of patient insights and feedback.  

Please visit www.UltraRareAdvocacy.com to learn more about the Patient Advocacy team’s work and some of the ways we engage with and support patients, families and organizations throughout the rare disease community. Importantly, the Patient Advocacy team serves as a resource to patient communities in the therapeutic areas in which Ultragenyx is involved, as well as to the rare disease community more broadly.  

Work Model:

Remote: Officially documented as working full-time from home, with travel to Ultragenyx's offices or other locations on occasion as needed.

Responsibilities:

• Support strategic initiatives to gather patient insights and identify actionable opportunities to incorporate information into the development and execution of Ultragenyx programs and patient advocacy strategies
• Support development of patient advocacy campaigns across multiple programs and disease areas with a specific focus on patient focused drug development.
• Contribute to and support the development and execution of patient advocacy communication and educational strategies, plans and tactics.
• Support team with the development and dissemination of patient advocacy education and materials.
• Help to develop and manage patient advocacy database.
• Assist in identifying unmet needs and challenges of patient communities across multiple programs and disease areas
• Support team with the implementation, tracking and issuing of agreements and contracts

Requirements:

• Pursuing a Master’s degree in a relevant field of study (e.g., public policy, health policy, health related field (genetic counseling, nursing etc.), with minimum of one year completed, enrolled as a full-time student with plans to return to school in fall term
• Available to work 40 hours/week during normal business hours
• Flexible; adapts work style to meet organization needs
• Meticulous attention to detail
• Good verbal communication skills; Ability to write clearly and effectively
• Capable of completing assigned responsibilities and keeping manager informed of work status
• Ability to actively listen, understand others’ points of views and perspectives and have empathy for people impacted by difficult situations
• Ability to understand, apply and integrate insights
• Passionate about helping others and making a difference in the lives of patients
• Familiarity with or interest in the areas of patient-focused drug development, patient engagement, patient programs and/or patient advocacy in the non-profit or pharmaceutical industry preferred
• Familiarity with use and role of social media platforms such as Facebook in the fields of patient advocacy and patient education

 

U.S. Hourly Wage Range:

• $27.00 - $29.00 per hour. The estimated hourly range reflects an anticipated range for this position. The actual hourly wage offered will depend on the candidate’s school year/level.

 

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The typical annual salary range for this full-time position is listed below. This range reflects the characteristics of the job, such as required skills and qualifications and is based on the office location noted in this job posting. The range may also be adjusted based on applicant's geographic location.

This position is eligible for annual bonus and equity incentives. Actual individual pay is determined by demonstrated experience and internal equity alignment.

Pay Range$1—$1 USD  Full Time employees across the globe enjoy a range of benefits, including, but not limited to:   ·         Generous vacation time and public holidays observed by the company ·         Volunteer days ·         Long term incentive and Employee stock purchase plans or equivalent offerings ·         Employee wellbeing benefits ·         Fitness reimbursement ·         Tuition sponsoring ·         Professional development plans   * Benefits vary by region and country

Ultragenyx Pharmaceutical is an equal opportunity employer and prohibits unlawful discrimination based on race, color, religion, gender, sexual orientation, gender identity/expression, national origin/ancestry, age, disability, marital and veteran status, and any other status or classification protected by applicable federal, state, and/or local laws. Reasonable accommodation will be provided for all protected statuses or classifications protected by applicable law, including individuals with disabilities, disabled veterans, for pregnancy, childbirth, and related medical conditions, and based on sincerely held religious beliefs. Applicants can request an accommodation prior to accepting a job offer. If you require reasonable accommodation in completing this application, or in any part of the recruitment process, you may contact Talent Acquisition by emailing us at talentacquisition@ultragenyx.com.

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It is unlawful in Massachusetts to require or administer a lie detector test as a condition of employment or continued employment. An employer who violates this law shall be subject to criminal penalties and civil liability.

Note to External Recruiters: All candidate activity and open positions are managed strictly through our Human Resources Department. Our Human Resources Department kindly requests that recruiters not contact employees/hiring managers directly in an attempt to solicit business and present candidates. Please note that failure to comply with this request will be a factor in determining a professional relationship with our organization. Submission of unsolicited resumes prior to an agreement set in place between the Human Resources Department and the recruiting agency will not create any implied obligation.  Inquiries on developing a recruiting relationship with us, may be directed to: talentacquisition@ultragenyx.com.