Associate Director, Patient Advocacy

Role Overview

• Develop and implement patient advocacy strategies and engagement plans for disease therapeutic areas, ensuring alignment with corporate objectives and strategies.
• Effectively balance and prioritize both pipeline indications and in market indications (i.e. gMG and CIDP).
• Execute patient advocacy engagement strategy Nationally and/or in local geographies that are aligned with cross-functional teams for in-market indications, translating US and market strategies to actionable tactics & events
• Build and manage relationships with US PAOs
• Build understanding of patient needs through interactive engagement such as prioritized patient events, patient panels, and cross-functionally identified opportunities, etc.
• Provide local support to patient services team during the patient onboarding process
• Represent argenx externally at events & conferences to educate and engage with patients, empowering other teams to do so when necessary
• Define and measure business impact at local, regional, and national events
• Build and maintain proficiency in the disease state, Patient Experience, and product knowledge to support the needs of the community
• Inform local market engagement by generating and synthesizing insights for teams
• Work cross-functionally within the ecosystem of support at argenx to identify the needs and opportunities relevant to patient advocacy
• Be a voice for the community within the organization and within the Advocacy team based on assigned pipeline & all in-market indications
• Effectively manage internal operations, including compliant management of events, patient advocacy organization sponsorships, and budgeting process.
• Build and own the Advocacy strategy for assigned indications from development through in-market in collaboration with your TA-level Advocacy colleagues
• Ensure alignment of activities and prioritization to strategy through frameworks, standardization, and ways of working

Requirements

• Bachelor’s Degree required (advanced degree preferred)
• 10 years industry or related experience
• Proven capability and success implementing innovative programs within rare disease and with minority and underserved patient communities
• Proven track record setting and maintaining adherence to an Advocacy strategy for a given indication or Therapeutic Area
• Veeva experience and proficiency required
• Experience with rare disease patient interactions and compliance required
• Willing to travel up to 50% of the time and attend events outside of business hours (e.g., weekends and evenings). Flexible schedule will be developed to accommodate evening and weekend work.

Benefits

• Comprehensive benefits package, including but not limited to retirement savings plans
• Health benefits