The DNE will support health care providers (HCPs), patients, and caregivers through education on Duchenne Muscular Dystrophy (DMD), the infusion process of our approved therapies, and Sarepta patient support programs.
Develop relationships with HCP’s, patients, and caregivers to support both the HCP’s and the families through their journey on therapy.
Collaborate closely with their cross functional partners to ensure ongoing compliance with therapy.
Provide nurse triage support during 24-hour on-call shift coverage.
Educate providers, infusion nurses, patients, and caregivers on Sarepta’s approved therapies for DMD and the infusion process.
Serve as recognized expert on DMD education (Genotype, deletions, disease process, etc.)
Stay current on the DMD environment.
Present to audiences compliantly.
Conduct Programs for disease state awareness.
Assist to improve infusion experience for DMD patients by providing ongoing support to the infusion nurses and sharing best practices.
Work with SareptAssist team and specialty pharmacy to ensure smooth transition from infusion center to home infusion for PMO therapies.
Support to patients and families as requested by case manager or health care provider.
Attend advocacy meetings and represent Sarepta at industry conferences.
Travel to training meetings, medical offices, and home health agencies, as necessary.
Document calls according to established guidelines (PV reporting).

Registered Nurse with a bachelor’s degree (BSN/BS/BA) from an accredited school.
At least 5 years of relevant experience; Infusion, Neuromuscular, Pediatric Neurology, or other specialty experience preferred.
Prefer 2 or more years’ experience in the pharmaceutical/biotech industry.
Highly interested in educating people on the disease state of Duchenne and working with health care professionals to support patients and families.
Exceptional presentation, verbal, and written communication skills.
Demonstrates team-based skills collaborating with cross functional partners, both internally and externally.
Competent and comfortable presenting in group and individual settings, live and virtually, with and without technology.
Empathetic, friendly, and relatable, with effective communication skills.
Comfortable speaking with patients/families.
Willingness to work as part of a team in a demanding environment.
Embraces continuous learning/seeks knowledge.
Valid driver’s license and in good standing.
Requires rotating on call coverage 24 hours/7 days per week.
Ability to travel, including ground and air transportation, up to 60% within assigned territory is required.
Preferred Bilingual English/Spanish preferred.

Duchenne Nurse Educator

Key skills