Manager, Patient Education – Events

Role Overview

Position Overview The Manager, Patient Education & Events leads the development and delivery of Cure HHT’s educational programming and community event experiences that inform, empower, and connect the HHT community.

This role designs and executes both virtual and in-person educational initiatives — including webinars, patient conferences, and learning resources — that transform medical information into accessible, actionable knowledge for patients, caregivers, and healthcare providers.

The Manager partners cross-functionally with the Senior Manager, Community Engagement, the Marketing & Communications team, as well as with Research, Clinical, and Philanthropy teams, to create a unified, mission-driven approach that amplifies awareness, strengthens trust, and deepens engagement.

Requirements

Qualifications Required

• Bachelor’s degree in Public Health, Education, Event Management, Communications, or related field
• 3–5 years of experience managing educational or event programs within a nonprofit, healthcare, or rare disease organization
• Proven experience planning and executing large-scale conferences or virtual education programs
• Strong organizational and project management skills, with the ability to manage multiple deadlines and priorities
• Excellent written and verbal communication skills, with the ability to translate complex topics into accessible language
• Proficiency in event and digital engagement platforms (Zoom, WordPress, Classy, Salesforce, or equivalents)
• Demonstrated ability to work cross-functionally and build relationships with diverse stakeholders

Preferred

• Experience working directly with patients, caregivers, or medical professionals in rare disease or chronic illness settings
• Experience in content development and instructional design for adult learning or patient education
• Familiarity with sponsorship management and event production best practices
• Master’s degree in a relevant field a plus

Core Competencies

• Educator Mindset: Communicates complex medical information with empathy and clarity.
• Organizer & Planner: Executes multiple projects with precision and attention to detail.
• Collaborator: Builds partnerships across teams and with external stakeholders.
• Data-Informed: Uses feedback and metrics to guide program growth and impact.
• Mission-Driven: Deeply committed to improving outcomes for individuals and families affected by HHT.

Tech Stack

• WordPress

Benefits

Compensation and Benefits Cure HHT offers a competitive salary commensurate with experience, medical, dental, vision benefits, generous PTO, remote work, and opportunities for professional development and leadership growth in a dynamic, mission-driven organization.